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Long Overdue Oct Update

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I updated the GoFundMe page as we re-boot that heading into 2023, but realized I haven't been here in a minute - so see below for my long winded 'thank you' to everyone that continues to follow Brian's recovery. I also wanted to share a few fundraisers/events that will be coming up for Brian's birthday month: Saturday, October 15th: Got Your Six 2nd Annual Blue Brew   @ Alter Brewing in Downers Grove (only 11 tickets left!) :  https://www.facebook.com/events/1315725255497938 Click here to purchase tickets Sunday, October 23rd: Bowling for Brian @ Lisle Lanes (bring the family out!) Envelopes for Brian: Another birthday effort coordinated by Brian's best friends coming soon :) --------------------------pasted from GoFundMe------------------------- Hi everyone. It has been a long 19 months of 'groundhog's' day for us, as we navigate Brian's recovery. Almost all of the time, this reality is surreal. I can't fathom that this happened or that it

Until the Fight Is Won

 I've been meaning to pop on here to provide an update but it's been a busy couple of months since the one year marker. So I'll list out some quick highlights and try to get back to updating more often. Thanks for loving Brian & checking in! New House Remodel: We are still under construction at the new house. Bathroom is currently in progress. Then will come the ramps, ceiling lift and equipment. Hoping to have him home by end of summer (so much red tape and time consuming processes with workers comp). Until then we are still at the rehab hospital and we LOVE and ADORE the staff there. Couldn't be happier to be held up with the best of the best. Going to be hard to leave them, which is something I didn't expect to feel...so SHOUTOUT to the incredible nursing staff, therapists, and everyone in between (transport/techs, cleaning staff, craft services, front desk, admin, office personelle) at Marianjoy. It's truly an anomaly to feel loved and cared for in the c

One Year

I don't have much of an update, though I'm sure many of you are itching to know how we are doing. For anyone not following along on my social media, Brian experienced his first seizure earlier this month. Luckily the nurse was in the room, it only lasted 3 minutes (anything longer than 5 minutes can be very scary and problematic). After it was over, all of his vitals returned to stable, but we took him to the emergency room to run some tests & imaging to ensure there was not further damage or underlying issues causing the seizures. We arrived at his original trauma hospital at 11am and were back in the rehab hospital by 7pm. I said it before, and I'll say it again - thank GOD we are back in the suburbs where his original team can see him regularly, because they are familiar with his case and he is treated with such care every time we are there. I hate how often I have to learn that (because I'd much rather not have a reason to be in the ER), but if it has to happen,

2022

I can't believe it's January 2022...or that I survived 2021. Or that Brian survived the crash at all. So, with that, I am grateful that we are both still here. Things have been very busy since we got the new house. Lots of packing, moving, home renovations, trips back and forth to the hospital to be with Brian for therapies. With all of that plus the holidays, I have had no extra energy to update everyone. So without further ado, here are the updates: In mid November, Brian said 'Lauren' & 'Okay.' He hasn't said any words since, but we're encouraged that he may be able to speak and also that he remembers me. Brian has begun spontaneously moving his left arm and fingers.  He has started to activate his shoulders and fully lift his arms (instead of just bending at the elbow). A few nurses have witnessed him sit up in bed (twice that we know of). His head control has improved immensely. He of course has had off days, but the past 2 weeks he seems to con

TBI Education

As we prep for home-care and moving, I thought it might be helpful to share some things I've learned about TBI and how we, as Brian's community, can continue to help him recover. I know that once we are home, there will be more opportunity to visit / help. And I totally understand that it's not easy for everyone to know what they can do to help, or how to help Brian specifically. I've acquired a lot of information and think it is incredibly helpful to share, and I want to encourage everyone to continue to participate in Brian's recovery because there's a lot of things we can do to help Brian's brain, beyond nursing care & therapy. For one - the brain & consciousness is still a true mystery, and it's only as recent as 2007 that doctors started to realize and accept that it can recover & heal. The question is why & how - and they still don't truly understand why certain people emerge and some don't. I find a lot of comfort in the fa

Moving Help!

Thank you to everyone that came out to the GY6 Blue Brew for Lambert & Ellis last night. And for the selflessness of this community that donated to Brian's recovery fund - the contribution made is beyond generous and will ease a significant amount of financial burden as we face new challenges with continuing care at home. It will also allow me to stay by Brian's side longer, which is invaluable. Thank you, quite simply, is not enough. Grateful for this community, and shout out to the Got Your Six Foundation for rallying everyone to play a part, all the time. Because you do more, other people do more, and will hopefully allow Brian, to also do more.  As we approach closing on the new house December 1st, our moving to-do list grows. I put together a sign up sheet to help both of our families start to organize helpers. Any amount of time, energy, muscle will be incredibly appreciated, especially because we are aware we are entering the holiday season. Thank you in advance, and

November Updates

As time passes, this nightmare is getting harder for me. Sometimes I can grasp that time is on our side because the brain needs time to heal. But patience is a virtue and has never been a skill of mine. So most of the time, I'm overwhelmed, anxious, anticipatory, excited to see if TODAY he does something more, something different, shows me he's still here. But I'm tired of celebrating the tiny wins. I want him all back, fully. We all do. I desperately try to remember that fear and faith are both invisible choices, and I'm trying really hard to continue down the faith route. It's not easy. I wish I had anything major to report. But for now, here are the small things: Brian's trach is out is healing up beautifully His swallowing is improving every day (more consistent, quick, and managing his saliva better aka less drool). On Monday he came down with pnemonia, but as of today (Fri) it seems to have cleared. He never showed any major discomfort or symptoms, thankfu